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Recognizing Batten Disease and the Heroes Who Stand Up to It

 

For the month of June, we will be donating 15% of all Xceptol CBD Capsule proceeds to Project Sebastian and their fight against Batten Disease!

"Batten Disease, also known as neuronal ceroid lipofuscinosis, refers to a group of rare inherited neurological conditions that can cause vision loss, progressive motor and cognitive decline, and seizures. 

 

Batten disease affects between 2 and 4 of every 100,000 people living in the U.S. and about 1 in every 100,000 worldwide.

 

Batten disease claims the lives of most children and teens carrying this disease. 

 

The symptoms of Batten disease can  among individuals in terms of their appearance and progression due to the different disease-causing mutations.

 

In forms that develop early in life, symptoms can begin insidiously as subtle behavior and personality changes, clumsiness, or slow learning. Progressive vision loss, seizures, and loss of motor skills are likely, and these patients often eventually develop Parkinson's-like movement difficulties, severe dementia. Many become bedridden." - Battendiseasenews.com

Project Sebastian


We had the privilege of being introduced to Sebastian and his father, Chris, about two years ago (both pictured). Sebastian is a charismatic, handsome young man who happens to also be fighting for his life against Batten disease. His father, Chris, has dedicated his life to the battle against Batten Disease and has developed a passion for raising awareness against rare diseases. This passion has given birth to "Project Sebastian" - a nonprofit with the mission to raise money for Gene Therapy Replacement and promote knowledge and further research into Batten Disease and other rare diseases. 

Clarico-Text-Image
Clarico-Image-Text

 

When we met Chris and Sebastian, we began to provide Sebastian with our CBD capsules free of charge, and this has blossomed into a long-standing relationship with a deep foundation of friendship. 

 

To celebrate Batten Awareness Month, we will be donating 15% of all Xceptol CBD Capsule sales proceeds to Project Sebastian to assist in their fight against Batten Disease for the month of June. 

 

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